Nystagmus Network
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Contact
Website: Nystagmus Network
Email: info@nystagmusnet.org
Tel: 01427 718093
Social media
Twitter: NystagmusUK
Facebook: Nystagmus Network | Facebook
Instagram: Nystagmus Network Instagram photos
You Tube: NystagmusNetwork YouTube
Who to contact
- Telephone
- 01427 718093 01427 718093
-
info@nystagmusnet.org
- Website
- The Nystagmus Network
- Scan to visit this website
Where to go
- Name
- Nystagmus Network
- Address
-
6, Lancaster Gardens
Kingston upon Thames
- Postcode
-
KT2 5NLView KT2 5NL on a map
- Notes
We operate a virtual service by email and telephone. Our website is available 24/7 for information and support.
Costs
- Associated Cost
- No
Availability
- Referral not required
- Referral Details
Please self refer by phone or email.
- Other notes
We offer support to parents and carers of children with nystagmus in addition to adults who are in some way affected by nystagmus.
Disclaimer
The role of this directory is to provide information; it is your responsibility to make sure that services are appropriate and meet your needs.
Whilst every effort has been made to ensure the accuracy of the information provided in this directory, "we" (Manchester City Council) do not accept any responsibility or liability for any errors that have occurred or if the information provided is not up to date. "We" are also not responsible for the content of third party websites / emails listed in the information / records visible on this website.
It is recommended that you always check with providers that their service or organisation meets your requirements. We offer an impartial service and we cannot recommend or endorse any providers listed.
Background checks
Manchester City Council has not conducted background checks or other forms of due diligence (for example, Disclosure Barring Service checks and Safeguarding checks) against the providers listed on the Manchester Service Directory. Users are advised to undertake your own checks and verifications prior to engaging the services of any providers listed on the Manchester Service Directory.
For that reason it is important that you carry out your own independent checks and verifications and are entirely satisfied before acting on the basis of any information or other material supplied in the website.
For advice on how to make your own appropriate checks and verifications please read the checklist information below.
Checklist
Note that the following advice which is given as a guide only, is given without any liability. In some circumstances this advice may not be sufficient. Therefore where appropriate you may need to seek further independent expert advice.
Some of the organisations on the website are not required to be registered with regulatory bodies. Therefore it is important that you make sure that the service is safe and entirely suitable for your needs especially if it is related to children or vulnerable persons. Below are some of the things you need to look out for.
- Check that the staff have been appropriately vetted. For more information on this please visit DBS.gov.uk
- Check that the service has child protection procedures in place if they are directly involved with children.
- Check that the staff are qualified and trained in the specific area.
- Check that the service operates an anti-discriminatory practice.
- Check that the service protects children, young people and vulnerable adults where it is required to do so.
- Check that the service has a health and safety policy.
- Check that the service has a complaints procedure.
Last Updated
Last updated: